Our Mission - Soft Bones Canada

Unlocking the potential to live well with hypophosphatasia.

Educate

Discover answers to frequently asked questions and a collection of publications, resources and programs to learn more about research, treatments and living life well with HPP

About HPP

HPP is a rare, metabolic bone and tooth disorder with several forms from mild to severe.

Living with HPP

Useful resources, benefits, tips and programs to support living well HPP

Media

Print and Visual Aids to understand HPP and its effects on the body

EMPOWER

Understanding what shapes access and policy empowers us to confidently engage in topics that impact our lives. It also provides researchers and health care professionals with patient insights that result in improved diagnostics, primary care and therapies.

Policy

Navigate the criteria that governs the journey from diagnosis to accessing therapy.

Vision

Who we are, where we’ve been, what we do and why.

Engage

We are actively gathering input, addressing needs and fostering understanding to better inform decision-makers.

CONNECT

Connecting patients and caregivers with each other and resources to build a stronger HPP community, effective in overcoming challenges through collaboration as they forge their way to a successful future with the aim to live well with HPP.